Special Report: The boy who can't eat

"Going out and getting a pizza and eating it all--like, I can't do that anymore," says Cris.
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Updated: 7/02/2012 11:38 pm
JACKSONVILLE (ActionNewsJax.com) -- A birthday without cake.  Thanksgiving without turkey.  That is 14-year-old Cris Serrano's reality.  He can't eat.

"Going out and getting a pizza and eating it all--like, I can't do that anymore," says Cris.

Essentially, Cris is allergic to food.  When he eats, he explains his reaction like this: "My esophagus slowly starts to close and close and close."

If Chris eats normally, like you or I would, he suffers symptoms like an allergic reaction.  It's actually a rare autoimmune condition called eosinophilic esophagitis.  It makes white blood cells attack his upper gastrointestinal tract.

"They get confused, they think food is a parasite," explains mom Jodi.  "So they attack the food as it's passing through."

Cris was diagnosed in 2011 after his mom noticed he was having a lot of stomach trouble.

While getting an answer to her son's ailment was a relief--Jodi admits, getting the diagnosis was tough on the family.

"I grabbed everything in the house that he could not eat--took it out in the backyard and set it all on fire."


Cris Serrano
Cris Serrano
THE MYSTERY DEEPENS

Perhaps one of the scariest things about Cris' condition--doctors don't really know why it happens.  Dr. Dawn Francis at Mayo Clinic researches the condition.

"Why they infiltrate into the esophagus is still a mystery," Francis said.

What is also a mystery--the climbing number of people suffering from this condition.  The numbers have been on the rise since 2000, now 1 in 10,000 people is affected by eosinophilic esophagitis.


Cris prepares his formula
Cris prepares his formula
LIVING WITH A MYSTERIOUS AILMENT

While doctors like Dr. Francis research this mysterious condition--Cris is trying to live with it. 

Not an easy feat for a 14-year-old boy who has to eat more like a 14-month-old boy.

"I really miss you know, just going in the refrigerator, making a sub and eating it," said Cris.  While the other three members of his family get their food from the fridge, Cris must get his nutrition from a can.

He has a "baby formula"-like substance pumped directly into his stomach 20 hours a day. The substance makes sure Cris is getting enough calories and vitamins.

His treatment also calls for him to try and incorporate simple foods into his diet in small portions.  Cris tries to see if he can stomach things like plain rice.  It doesn't always work, but Cris has hopes because some people who have this condition recover after a while.
"I've learned to live with it," he said. "I really can do a lot of stuff."

THE SWEET SPOT

There is at least one thing Cris can smile about.  He can eat certain candies.  Smarties are a particular favorite.

When the company that makes Smarties found out about Cris' condition, they made a sweet offer--a lifetime supply of their candy.

The gesture helps brighten Cris' day. He has hopes that someday he'll eat bad college food, taste a wedding cake.  But for now, he says--he's looking at the bright side.  Focusing on what he can do as opposed to what he can't.

"I've learned to live with it," he said.  "I really can do a lot of stuff."

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