Right now, a 3-year-old boy in Jacksonville is waiting for a new liver.
Bentley Bullard’s family said he was diagnosed with a rare metabolic disorder called propionic acidemia affects his ability to process certain proteins and fats.
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Lawson said Bentley was diagnosed a few days after he was born at Wolfson Children’s Hospital.
Local physicians told his parents he is currently the only child diagnosed with this disorder in Jacksonville.
Lawson said Bentley currently uses a feeding tube and his learning development has been delayed.
According to the U.S. Library of Medicine, propionic acidemia affects one out of every 100,000 thousand people in the United States.
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Cox Media Group